Eczema Hell
Hi all been out of it for a while the main reason being that my son had some more rough patches.
When I returned to England I paid to see a top specialist in Great Ormund Street hospital. He said that eczema is not always an allergy and that now they know for sure that eczema is caused by two specific genes or lack of them working properly. I know mummybee that your going to cry out that its diffinately all to do with food but after one year down the line I have to say I am not really sure it is. Perhaps there are certain foods which agrivate the eczema but I do beleive that its all in the genes. First my grandmother had severe eczema she lived in england her whole life and ate meat and two veg every day her daughter my aunt lives in spain also still has eczema but eats spanish food every day. My son has severe eczema but we live in Hk and I eat chinese food every day.
What I am trying to say is that the only thing which we all share is blood. I sure some foods may have caused James to be worse and my breast milk may be making him worse but like I mentioned before on my previous posts I changed to Nutramigen for around one week and his condition did not improve if anything he was worse.
So what do you do, the million dollar question? I personally got to the point where I stopped caring my son was so ill I thought he might die. Finally I decided to just feed him meat in the end he has to eat it a some point so why not earlier better to know one way or the other. So I made him chinese congee with pork.
Nearly six months down the line my son is much better although many people think he is still really bad. He now every day eats a huge bowl of meat rice and veg. I introduce different veg at different times and it does not seem to relate to his eczema. Can I be sure? In answer no, but I can tell you now that his body is stronger (much better after starting meat) that his condition has improved.
Anyway you have to decide yourself if you want to feed meat to your baby but if you really don't know what food is causing what and your not even sure whether it is food causing a problem then your probably in a similar situation that I was in. I still really don't know for sure which foods may cause a problem but by keeping certain foods a constant you can see whether there is an effect or not. For example my baby only eats pork or chicken with spinach and rice everyday and I add in extra foods maybe once or twice a week I know the three basic foods have no problem as he has stedily got better continually eating these foods.
As for steroids while in england I showed the doctors what steroids I had been putting on my babies face and they were horrified basically grade 3 steroids which is what I was using are too strong for a baby and far too strong for a babies face. All the doctors I saw were in agreement on this and even the goverment doctor in hk will not give you these kinds of steroids either. Basically you can pretty much only use hydrocortazone regularly strong stuff in england they will only give you for a real emergency and many doctors not even then.
I had the very unplesant experience of having to ween my babies face off of the grade 3 steroid which was horrible. His skin had become addicted to the steroid once I discontinued its use my babies face exploded leeking water continually and his skin disintigrated until his face had two bloody wet red cheeks. He looked like a red and white panda. I then had to put back hydrcortazone which of course did not work very well and the eczema seemed to get quite out of control. At great Ormund Street I was given back a grade 3 but highly highly diluted steroid to use in wet wrapping but I never used it from the fear of my son being re-addicted to the seroid. Lucky he never needed it once I got my son eating properly his health improved incredibly and with his health improving so did his eczema.
Basically if you put streoid on the skin it helps to control the eczema highly necessary but if your eczema is like my babies in that it is continual you never have a day when there is no rash then be careful about continually using strong steroids.
Anyway that it all I have timeto say as my baby is screeming his head off!!!!!
Hi all been out of it for a while the main reason being that my son had some more rough patches.
When I returned to England I paid to see a top specialist in Great Ormund Street hospital. He said that eczema is not always an allergy and that now they know for sure that eczema is caused by two specific genes or lack of them working properly. I know mummybee that your going to cry out that its diffinately all to do with food but after one year down the line I have to say I am not really sure it is. Perhaps there are certain foods which agrivate the eczema but I do beleive that its all in the genes. First my grandmother had severe eczema she lived in england her whole life and ate meat and two veg every day her daughter my aunt lives in spain also still has eczema but eats spanish food every day. My son has severe eczema but we live in Hk and I eat chinese food every day.
What I am trying to say is that the only thing which we all share is blood. I sure some foods may have caused James to be worse and my breast milk may be making him worse but like I mentioned before on my previous posts I changed to Nutramigen for around one week and his condition did not improve if anything he was worse.
So what do you do, the million dollar question? I personally got to the point where I stopped caring my son was so ill I thought he might die. Finally I decided to just feed him meat in the end he has to eat it a some point so why not earlier better to know one way or the other. So I made him chinese congee with pork.
Nearly six months down the line my son is much better although many people think he is still really bad. He now every day eats a huge bowl of meat rice and veg. I introduce different veg at different times and it does not seem to relate to his eczema. Can I be sure? In answer no, but I can tell you now that his body is stronger (much better after starting meat) that his condition has improved.
Anyway you have to decide yourself if you want to feed meat to your baby but if you really don't know what food is causing what and your not even sure whether it is food causing a problem then your probably in a similar situation that I was in. I still really don't know for sure which foods may cause a problem but by keeping certain foods a constant you can see whether there is an effect or not. For example my baby only eats pork or chicken with spinach and rice everyday and I add in extra foods maybe once or twice a week I know the three basic foods have no problem as he has stedily got better continually eating these foods.
As for steroids while in england I showed the doctors what steroids I had been putting on my babies face and they were horrified basically grade 3 steroids which is what I was using are too strong for a baby and far too strong for a babies face. All the doctors I saw were in agreement on this and even the goverment doctor in hk will not give you these kinds of steroids either. Basically you can pretty much only use hydrocortazone regularly strong stuff in england they will only give you for a real emergency and many doctors not even then.
I had the very unplesant experience of having to ween my babies face off of the grade 3 steroid which was horrible. His skin had become addicted to the steroid once I discontinued its use my babies face exploded leeking water continually and his skin disintigrated until his face had two bloody wet red cheeks. He looked like a red and white panda. I then had to put back hydrcortazone which of course did not work very well and the eczema seemed to get quite out of control. At great Ormund Street I was given back a grade 3 but highly highly diluted steroid to use in wet wrapping but I never used it from the fear of my son being re-addicted to the seroid. Lucky he never needed it once I got my son eating properly his health improved incredibly and with his health improving so did his eczema.
Basically if you put streoid on the skin it helps to control the eczema highly necessary but if your eczema is like my babies in that it is continual you never have a day when there is no rash then be careful about continually using strong steroids.
Anyway that it all I have timeto say as my baby is screeming his head off!!!!!